Advocacy

Focus on Advocacy

Advocating for improved clinical outcomes is a priority for the Angiogenesis Foundation. Generating awareness, accurate understanding, and differentiation between new and pre-existing treatments are critical elements for improving the quality of healthcare worldwide. The Foundation works by bringing together key stakeholders to jointly define the challenges facing treatment at the level of access, then identifying the barriers to modern care, prioritizing those that can be effectively addressed, and then road mapping specific actions to take that will make innovative and validated treatments available to patients.

To these ends, the Foundation leverages its third party position, expertise, networks, and distribution channels to: establish awareness about specific diseases and unmet needs; discuss the data supporting the value of emerging validated treatments; identify methods to optimize care pathways.

The Foundation’s advocacy initiatives have focused on engaging and delivering key messages to:

National Health Authorities and Payers
Technology assessment organizations
Disease-based advocacy organizations
Clinical investigators
Community practice leaders
Influential journalists
Patients and their caregivers

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PATIENT ADVOCACY

On October 14, the Angiogenesis Foundation hosted a Patient Forum and Dinner, "Antiangiogenesis: Answer to Cancer," at the Westin Boston Waterfront Hotel, where it convened a diverse group of patients, scientists, caregivers, and healthcare practitioners to celebrate life-changing medical breakthroughs and research advances on cancer-fighting foods.

After a delightful reception where guests mingled over antiangiogenic appetizers, Co-Founder and President of the Angiogenesis Foundation Dr. William Li spearheaded a Q&A session with honorary guest and stage IV colon cancer patient, Randall Cox, who shared his experience in battling and living with cancer. The Q&A discussion was followed by two powerful video interviews featuring oncologist Dr. Crystal Denlinger and metastatic colorectal cancer survivor Garvin Evans, who echoed the same resounding message as did Randall Cox: the attitude and support system of a cancer patient can make all the difference in their treatment outcomes. Also, patients must seek multiple opinions and ask questions to take an active role in managing their care—a philosophy that underscores the work of the Foundation.

The program continued with a presentation by Dr. Li introducing the DiY Health Revolution and the Eat to Beat Cancer (ETB) campaigns with new research on how lifestyle choices like maintaining a healthy diet, adequate physical activity, sufficient sleep, and emotional well-being can help to prevent and beat some of the world’s most dreaded diseases, including cancer. For example, Dr. Li showcased intriguing research about broccoli stems and carrot tops that challenges us to re-assess how we think about food. Many cultures regard these food parts as waste and throw them into the trash, but new research shows that broccoli stems and carrot tops are actually rich in antiangiogenic activity and even outperform the part of the food that is traditionally consumed (broccoli florets, carrot sticks). This pushes us to think more broadly about what we have left out of our diet that should have been included to fight cancer.

Implementation of cutting-edge research findings through campaigns such as ETB and DiY Health are just some of the ways that the Foundation is thinking outside the box to push the medical field and catalyze innovative strategies for advancing global health.

Finally, guests proceeded to dinner, where they enjoyed a healthy and delicious buffet of cancer-preventive foods prepared by local Chef Roy Darling and engaged in thoughtful discussion of the evening’s program. The event succeeded in bringing together members of the local oncology and health community, and in advocating for improved outcomes for patients fighting cancer.

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MULTIMEDIA CAMPAIGNS COPY

The Angiogenesis Foundation builds medical advocacy campaigns using sophisticated web platforms, updated social media, and print media dissemination at special events. We create scientific educational content that is accurate, easy to understand, and contains practical information about angiogenesis and its relation to a given disease state and overall health.

Our multimedia campaigns use compelling graphic media that includes:

animations of angiogenesis and antiangiogenesis;
message-based motion graphics;
slide shows containing "Calls to Action"
videos featuring patient or participant testimonials
downloadable brochures for patients and their caregivers
infographics
white paper reports based on recent expert summits
references from the peer-reviewed literature; and
links to other resources for information and connections to other advocacy groups.

These tools can be accessed by patients and their caregivers, advocacy leaders, and other stakeholders to help individuals make more informed decisions in their healthcare.

The tools are convertible to materials that can be distributed at live events, such as conference exhibits, and awareness raising events.

Most projects are initially produced in English, with a framework that enables future translation into different languages (for example, Spanish, French, Italian, German, Japanese, Portuguese, etc).

The Science of AMD focuses on increasing international public and patient awareness of wet AMD, the role of angiogenesis in vision loss, and the importance of antiangiogenic treatments for saving vision and keeping a high quality of life for individuals affected by wet AMD worldwide.

The Science of CRC focuses on increasing international public and patient awareness of colorectal cancer (CRC), the role of angiogenesis (new blood vessel growth) in tumor development, and the importance of antiangiogenic treatments for treating CRC and keeping a high quality of life for individuals affected by CRC worldwide.

The Science of DME advocacy campaign focuses on increasing global public awareness of diabetic macular edema (DME), the role of vascular endothelial growth factor (VEGF) in DME, and the benefits of anti-VEGF treatments for patients with DME.

The Science of RVO advocacy campaign provides accurate, easy to understand, and useful information about retinal vein occlusion (RVO), and the evidence supporting anti-VEGF therapy for CRVO. We believe everyone affected by CRVO can be empowered with knowledge of relevant treatments and the practical steps they can take to fight vision loss.

The Eye Can Do It advocacy campaign is a patient-friendly web resource about vision loss for individuals living with diabetes. This educational tool features an
e-book about what to do to protect your vision when diagnosed with diabetes, resources to consult for continued care, and the latest in treatment options. Connect with the Eye Can Do It community on Facebook and Twitter to get the most up-to-date information from The Angiogenesis Foundation regarding news, events, and research development.

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SUMMITS

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WHITE PAPER REPORTS

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DISSEMINATION EVENTS

Eye Disease

As part of its global campaigns in eye diseases including AMD, DME, and CRVO, the Angiogenesis Foundation maintains a presence at major global ophthalmology conferences around the world to disseminate its wide range multimedia materials—white papers, infographics, patient brochures, videos—through exhibits and presentations. Euretina 2015 (Sept 2015, Nice, France): Exhibit Booth

• 920 booth visitors from 88 countries • 400 surveys collected from retinal specialists and ophthalmologists • 230 AMD Expert Summit White Papers distributed • 215 DME Expert Summit White Papers distributed • 124 DME Canadian Expert Summit White Papers distributed • 288 DME Patient Brochures for eye clinic waiting rooms distributed • 750 AMD Infographic posters for eye clinic wall charts distributed • 750 DME Infographic posters for eye clinic wall charts distributed • 345 Flash drives with all AMD electronic media (AMD animations, infographics, patient brochures, “Wake Up and See” motion graphic, white papers; content available in English, French, German, Italian, Japanese, Spanish, Chinese, Polish, Russian, Ukrania) along with DME multimedia distributed.

Euretina 2014 (Sept 2014, London, UK): Exhibit Booth

• 477 booth visitors from 57 countries • 257 surveys collected from retinal specialists and ophthalmologists • 182 AMD Expert Summit White Papers distributed • 228 DME Expert Summit White Papers distributed • 384 AMD Patient Brochures for eye clinic waiting rooms distributed • 312 DME Patient Brochures for eye clinic waiting rooms distributed • 718 AMD Infographic posters for eye clinic wall charts distributed • 693 DME Infographic posters for eye clinic wall charts distributed • 386 Flash drives with all AMD electronic media (AMD animations, infographics, patient brochures, “Wake Up and See” motion graphic, white papers; content available in English, French, German, Italian, Japanese, Spanish, Chinese, Polish, Russian, Ukrania) along with DME multimedia distributed.

Euretina 2013 (Sept 2013, Hamburg, Germany): Exhibit Booth

• 587 booth visitors from 76 countries • 380 surveys collected from retinal specialists and ophthalmologists from 65 countries • 165 International AMD Expert Summit 2013 White Papers distributed • 30 Asia-Pacific AMD Expert Summit White Papers distributed • 30 Australia AMD Expert Summit White Papers distributed • 337 AMD Patient Brochures for eye clinic waiting rooms distributed • 180 DME Patient Brochures for eye clinic waiting rooms distributed • 180 CRVO Information Brochures for clinicians and patients distributed • 650 Infographic posters for eye clinic wall charts distributed • 454 Flash drives with all AMD electronic media (AMD animations, infographics, patient brochures, “Wake Up and See” motion graphic, white papers; content available in English, French, German, Italian, Japanese, Spanish) along with DME and CRVO multimedia distributed

Euretina 2012 (September 2012, Milan, Italy): Exhibit Booth

• 607 booth visitors from 70 countries • 394 surveys collected from retinal specialists and ophthalmologists • 500 International AMD Expert Summit 2011 White Papers distributed • 600 Patient Brochures for eye clinic waiting rooms distributed • 120 Infographic posters for eye clinic wall charts distributed • 850 Flash drives with all AMD electronic media (AMD animations, infographics, patient brochures, “Wake Up and See” motion graphic, white papers; content available in English, French, German, Italian, Japanese, Spanish) distributed

ARVO 2013 (May 2013, Seattle, WA, USA): Exhibit Booth

• 867 booth visitors from 52 countries • 545 surveys collected from retinal specialists and ophthalmologists • 200 International AMD Expert Summit 2011 White Papers distributed • 300 Asia-Pacific AMD Expert Summit White Papers distributed • 100 Australia AMD Expert Summit White Papers distributed • 400 Patient Brochures for eye clinic waiting rooms distributed • 750 Infographic posters for eye clinic wall charts distributed • 700 Flash drives with all AMD electronic media (AMD animations, infographics, patient brochures, “Wake Up and See” motion graphic, white papers; content available in English, French, German, Italian, Japanese, Spanish) distributed

ARVO 2012 (May 2012, Fort Lauderdale, FL, USA): Exhibit Booth

• 552 booth visitors from 46 countries • 498 surveys collected from retinal specialists and ophthalmologists • 400 International AMD Expert Summit 2011 White Papers distributed • 400 Patient Brochures for eye clinic waiting rooms distributed • 400 Infographic posters for eye clinic wall charts distributed • 400 Flash drives with all AMD electronic media (AMD animations, infographics, patient brochures, “Wake Up and See” motion graphic, white papers) distributed

APAO 2012 (April 2012, Busan, South Korea): Presentation

• Dr. William Li, President of the Angiogenesis Foundation, delivered a presentation on the results (Calls to Action) of the first International Expert Summit on Wet AMD • Presentation attended by nearly 1,000 attendees, representing more than 50 countries worldwide

Oncology

ASCO 2015 (May 29 - June 2, 2015, Chicago, Illinois): Exhibit Booth

• 120 booth visitors from 43 countries • 125 surveys collected from oncologists • 19 US CRC (Colorectal Cancer) Expert Summit White Papers distributed • 16 International CRC (Colorectal Cancer) Expert Summit White Papers distributed • 8 Latin American CRC (Colorectal Cancer) Expert Summit White Papers distributed • 16 Patient Brochures for clinic waiting rooms distributed • 100 Infographic posters for clinic wall charts distributed • 232 Gastric Infographic posters for clinic wall charts distributed • 162 Flash drives with all Science of CRC electronic media (CRC animations, infographics, patient brochures, “I AM ANGIOGENESIS” motion graphic, white papers) distributed

ASCO 2014 (May 30 - June 3, 2014, Chicago, Illinois): Exhibit Booth

• 130 booth visitors from 35 countries • 63 surveys collected from oncologists • 15 US CRC (Colorectal Cancer) Expert Summit White Papers distributed • 5 International CRC (Colorectal Cancer) Expert Summit White Papers distributed • 23 Latin American CRC (Colorectal Cancer) Expert Summit White Papers distributed • 300 Gastric Infographic posters for clinic wall charts distributed • 15 Flash drives with all Science of CRC electronic media (CRC animations, infographics, patient brochures, “I AM ANGIOGENESIS” motion graphic, white papers) distributed

ASCO 2013 (May 30 - June 3, 2013, Chicago, Illinois): Exhibit Booth

• 259 booth visitors • 109 surveys collected from oncologists • 125 US CRC (Colorectal Cancer) Expert Summit White Papers distributed • 75 US RCC (Renal Cell Carcinoma) Expert Summit White Papers distributed • 100 Patient Brochures for clinic waiting rooms distributed • 250 Infographic posters for clinic wall charts distributed • 200 Flash drives with all Science of CRC electronic media (CRC animations, infographics, patient brochures, “I AM ANGIOGENESIS” motion graphic, white papers) distributed

European Cancer Congress 2013 (ECCO-ESMO-ESTRO) (Sept 2013, Amsterdam, Netherlands): Exhibit Booth

• 662 booth visitors from 81 countries • 443 surveys collected from oncologists • 115 US CRC (Colorectal Cancer) Expert Summit White Papers distributed • 280 US International CRC (Colorectal Cancer) Expert Summit White Papers distributed • 30 US RCC (Renal Cell Carcinoma) Expert Summit White Papers distributed • 200 Patient Brochures for clinic waiting rooms distributed • 400 Infographic posters for clinic wall charts distributed • 300 Flash drives with all Science of CRC electronic media (CRC animations, infographics, patient brochures, “I AM ANGIOGENESIS” motion graphic, white papers) distributed.

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REACH AND AUDIENCE

The Angiogenesis Foundation’s core competencies include: 1) third party objectivity; 2) deep scientific and clinical knowledge of angiogenesis and its role in disease pathology and disease management; 3) multi-disciplinary expertise; 4) demonstrated strategic advocacy capabilities; and 5) global networks of patients, healthcare professionals, researchers, health policymakers, and advocates.

Today, the Foundation’s programs utilize live events, traditional and new media, web platforms, and multimedia channels, and are conducted across North America, Europe, Latin America, Asia, and Australia. As an active member of the Clinton Global Initiative, the Foundation’s commitment to lower the global burden of disease starting with cancer has impacted more than 32 million people across 148 countries since 2010. In 2012, the Foundation was recognized by President Bill Clinton for its advocacy achievements.

The Angiogenesis Foundation’s impact extends across a broad expanse of stakeholders through multiple channels:

Total reach in 2012: 27,731,000 individuals.
Channels used to reach audiences include: websites (.org), blogs, Facebook, Twitter, TED, television broadcast (The Dr. Oz Show, The Martha Stewart Show), satellite radio, print media, exhibits and presentations at conferences (ASCO, AACR, etc.), Clinton Global Initiative, advocacy networks, and through >300 expert faculty members in academia, government, and industry.
113,000 website users, 30% referred from www.doctoroz.com, 10% referred from Facebook.
24,000 oncologists in Angiogenesis Foundation network.
14,500 registered members representing the public intertested in cancer from 59 countries
All 50 states are represented in the U.S.
89% either have cancer, are at high risk, or know someone close who has cancer.
42% report existing organizations and resources don’t adequately meet their information needs related to cancer.
84% report some change in behavior or action taken based on information provided by the Angiogenesis Foundation.
56% report they have shared information with > 3 people in their community.
International activities reach health decision makers in Europe, Australia, Latin America, and Asia Pacific countries.
Foundation representatives have testified on disease treatment, prevention and quality of life issues before the U.S. Food and Drug Administration (FDA), the Centers for Medicare & Medicaid Services (CMS), and on Capitol Hill.

Pictured above, discover the foods that can help starve cancer with Dr. William Li, appearing with Martha Stewart on her show. Dr. Li also delivers the message of Eat to Beat Cancer with Dr. Oz, inspiring people to eat foods that fight cancer every day.

Using Our Network - Helping Patients by Improving Their Doctors’ Knowledge

The Angiogenesis Foundation possesses a network of 31,645 healthcare providers:

Oncologists: 9,146
• 8371 MDs; 160 DOs; 46 RNs; 570 Allied

Cardiologists: 9,813
• 7975 MD, 362 DO, 236 Nurse, 234 Allied

Dermatologists: 5,532
• 1021 MDs; 35 DOs; 3 Nurses; 4,473 Allied

Family Practice: 6,240
• 4,819 FMs; 1,421 FP

Wound Care Providers: 914
• 311 MDs; 254 DPMs; 104 PT; 119 RNs; 97 Allied

The Angiogenesis Foundation has an online audience in over 180 countries.

Newmap

Your impact

Impact

Advocacy

Focus on Advocacy

Eye Disease

Oncology

Using Our Network - Helping Patients by Improving Their Doctors’ Knowledge

The Angiogenesis Foundation has an online audience in over 180 countries.

Your impact

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